I have been here now for 5 days and been very busy! I should say, busy but loving it.
As I have mentioned in previous posts, I was asked to speak at a patient symposium hosted by the University of North Carolina at Chapel Hill. This symposium covered all types of functional GI disorders from heartburn and chest pain through fecal incontinence…and of course, included IBS and everything in-between. There are over two dozen chronic functional GI disorders! Numerous digestive health experts spoke about their area of expertise to provide the latest about diet, medical treatments, role of fiber and probiotics, hypnotherapy and cognitive behavioral therapies. Even topics such as how you and your doctor can work best together were covered. To learn more about UNC’s Functional Gut Disorder Program and visit their video library which will include this symposium click here!
Following the patient care symposium, folks from the International Foundation for Functional Gastrointestinal Disorders (IFFGD) and it’s grass roots arm, Digestive Health Alliance, gathered a group of us to visit Capital Hill to help with lobbying efforts to increase awareness of functional gut disorders, encourage congressmen and women to co-sponsor bill HF 842, the Functional Gastrointestinal & Motility Disorders Research Enhancement Act. And of course, to ask that more money be allocated to NIH and appropriated for research for functional gut disorders.
Learn more on how you can support IFFGD’s mission by visiting their site here!
One of my favorite parts of being involved with GI patient care events is that I am surrounded with other health professionals and patient advocates. Translation=smart but extremely compassionate people. I love having time to talk with the doctors as they bring with them a wealth of knowledge and perspective. To be honest, I might drive them a little crazy with all my questions… 🙂
One of my favorite patient advocates and educator’s is Crystal Saltrelli. Crystal’s site is invaluable for the person with gastroparesis–she provides so much information to help patients that suffer with this disorder. Visit Crystal’s site here!
Crystal and I had the chance to finally meet in person in DC. Yay for me!So I hope you consider becoming a friend of IFFGD/DHA–and maybe next year we can all visit Capital Hill together to make an even greater impact —more people–more voices–greater change!
Enjoy your day. Today is my birthday….and I am hoping to spend some time taking it down a notch! 🙂