Comments on: IBS + Stigma

By: katescarlata

katescarlata — Mon, 02 Mar 2020 18:11:29 +0000

In reply to Sharyn.

I can’t really comment specifically to your clinical case–but would work with a dietitian that specializes in GI nutrition. You may should have essential fats in your diet (safflower, walnut oil) and may be add higher risk of small intestinal bacterial overgrowth–so discuss more about that with your physician.

By: Sharyn

Sharyn — Mon, 17 Feb 2020 19:19:52 +0000

As a pancreatic cancer survivor-14 yrs-I have developed major bowe,gut,digestive issues..I am taking Creon..trying to adhere to FODMaP principles..any additional info/advice?

By: katescarlata

katescarlata — Fri, 15 Nov 2019 21:10:37 +0000

In reply to Terri Sidell.

Thanks Terri for your comment. It sure can feel like prejudice–if someone hasn’t lived with IBS–they certainly don’t understand fully the lived experience.

By: katescarlata

katescarlata — Fri, 15 Nov 2019 21:08:47 +0000

In reply to Joan Locker. Thanks for chiming in. Glad we are on the same page. Microscopic inflammation can occur with IBS--but not sure spastic colitis is exactly the best term.

By: katescarlata

katescarlata — Fri, 15 Nov 2019 21:07:28 +0000

In reply to Michelle. I very rarely would recommend that diet combo due to such a severe restriction--and it has not been studied. I'm sorry I don't have any recipes to help guide you.

By: Michelle

Michelle — Thu, 14 Nov 2019 14:57:23 +0000

Hi Kate,

I have been told I need to now follow the low fodmap as well as specific carbohydrate diet. (Mostly, that means to me low fodmap but now with no grains, oats, obvious carbs, etc) Do you have any recipes that follow these 2 combined diets? Or have any resources I can follow. I have the “Break the Vicious Cycle” book recipes, but that contains high fodmap ingredients. ie. honey, apples, etc. I recently saw an RD and suggested I follow the SCD recipes.
Thanks!
Michelle

By: Joan Locker

Joan Locker — Wed, 13 Nov 2019 20:53:34 +0000

I have posted several times that the name Irritable Bowel Syndrome should be changed. People hearing it don’t understand the severity and suffering that is disabling.
I think an older term—Spastic colon or spastic colitis was better although
“Colitis “ indicates inflammation usually not part of IBS.
Joan Locker (MS, RD)

By: Terri Sidell

Terri Sidell — Wed, 13 Nov 2019 17:45:02 +0000

Nice article on stigma, or should I say prejudice. It certainly does exist. I have in the past requested a “special meal” at social functions, only to be made the subject of ridicule. Food items were twisted to be of something I never could eat to what I wanted for the meal. While I never asked for anything but plain food, restaurants would not accommodate anymore,even if they had done in the past. Airlines, when they offered meals would not accept my simple requests. A client told me, ” you should have told them you have allergies”. It seems that allergies are much easier understood than food sensitivities. I have found it makes it easier to lie and say I have allergies than food sensitivities. The last time I went to our National Poodle Specialty dinner I had asked for a “special plate” stating what I could eat. When I went to the President of the organization to tell her I was the one requesting the “special plate”, she replied ,” Oh you, and those Jews, cause me so much problems!!” I have seen quite going to those dinners, and our recent 50th H.S. Class reunion dinner. I am just tried of arguing with people and not going to pay $50.00 a plate for food I am unable to eat.