Comments on: Shared Decision Making with IBS

By: Kim A

Kim A — Sun, 01 Apr 2018 16:41:10 +0000

In reply to katescarlata. Kate, I 100% agree, they would need to. If people in the medical community would get more creative and think outside the textbook box, maybe they would be willing to start training people to be able to truly understand the science and real life applications to help us. As long as there are DR's and practitioners willing to work alongside them, this would be as possible as GI nutritionists and dieticians are but more helpful.

By: Kim A

Kim A — Sun, 01 Apr 2018 16:34:46 +0000

In reply to Fran. Fran, that is often the case, very true. {{hugs}} for you and all of us dealing with these gut issues. :)

By: Fran

Fran — Fri, 23 Mar 2018 14:35:35 +0000

In reply to Kim A. You said it so beautifully. It is sad how our lives are textbook . We are the clinical study for there drugs and they get away with it.

By: dkaj

dkaj — Mon, 19 Mar 2018 18:04:04 +0000

Kate, do you know if any of these options consider patients who have co-existing conditions like acid reflux, gastritis, or cross reactive allergies between foods and pollens on top of IBS. Seems like so much research is going into IBS which is wonderful, but this is mainly for IBS and SIBO. Unfortunately for some, there are these co-existing conditions that just get lumped into IBS without further consideration. So, if one is not completely diagnosed accurately, and given peppermint oil, this could be a reflux or gastritis trigger but safe for just IBS.

By: katescarlata

katescarlata — Mon, 19 Mar 2018 17:11:00 +0000

In reply to Kim A. Fully agree. IBS and SIBO patients deserve more. Thanks for you for your thoughtful and thought-provoking comment. I love the idea of a GI coach--but he/she would absolutely need to truly understand the science.

By: Kim A

Kim A — Mon, 19 Mar 2018 17:03:58 +0000

In my personal experience it has always been antibiotics, low fodmap with nothing more than a list and no guidance on how to do it, and pump up your fiber. So yes, one size fits all, mostly in the form of antibiotics and a rushed visit. The last GI dismissed me the 2nd I refused more antibiotics, which was the trigger that put me over into SIBO to begin with.

I have tried my share of drugs and supplements in the past, I do not do well on them. Fodmap would be great if I could eat most foods but with SIBO I can’t. It shouldn’t have gone this far for me and wouldn’t have if I had proper care from the beginning.

We need not only to be listened to, as we know our bodies best, and have alternatives, but we also need management, customized to each individuals needs, lifestyle, income, etc. More DR’s and practitioners need to accept more insurances, so we can have quality medical care for this. How to schedule ourselves, how to do food elimination with ease and confidence, to know which foods should be in or out. To be educated on the relationship between stress and worry and our gut and how to help manage that in practical ,real life ways. Basically, we need a G.I. Coach. This goes way beyond just us and our DR’s, it involves a complete lifestyle review and solutions.
Unfortunately they only look for the big scary stuff or the text book solutions. We need current and long-term support so it doesn’t debilitate living life and leading to much worse.

I’m sure that is more than you wanted but IBS and SIBO are not black and white or text book to live with. Most “solutions” are bandaids or temporary. We need more.

Thanks for listening.