Comments on: Diagnosing Celiac Disease https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/ Kate Scarlata RD Wed, 19 Oct 2016 19:32:48 +0000 hourly 1 By: katescarlata https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564415 Wed, 19 Oct 2016 19:32:48 +0000 https://blog.katescarlata.com/?p=9606#comment-1564415 In reply to Jen Roark.

Great question Jen. I am not sure.

]]> By: Jen Roark https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564397 Tue, 18 Oct 2016 22:33:43 +0000 https://blog.katescarlata.com/?p=9606#comment-1564397 Kate, do you know how frequently a child of a parent who has celiac should be retested (if it was negative), since it can present itself at any time? Yearly? Thanks.

]]> By: katescarlata https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564257 Mon, 10 Oct 2016 12:13:09 +0000 https://blog.katescarlata.com/?p=9606#comment-1564257 In reply to Sandra.

From what I understand, 1/2 a slice of bread would not be enough of a gluten challenge. …And 3 months seems long. Did they test her for the genes for celiac first? If she is negative for the genes, then she does not have celiac. That is what I would do first. No need to change her diet at all for gene testing. HOWEVER, if she is positive for the genes, then typically next step would be to do a gluten challenge to test serology or do a biopsy.

]]> By: Sandra https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564220 Sat, 08 Oct 2016 05:22:02 +0000 https://blog.katescarlata.com/?p=9606#comment-1564220 My daughter is due to be tested for Coeliac’s Disease. She has been gluten free because she has found that she gets headaches when she eats gluten. Her gastroenterologist suggested she eats 1/2 a slice of bread each day for 3 months prior to her testing/endoscopy. Do you think that the lower amount of gluten over a longer period will be ok?

]]> By: katescarlata https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564176 Wed, 05 Oct 2016 18:36:36 +0000 https://blog.katescarlata.com/?p=9606#comment-1564176 Come say hello to me, Megan if you make it to my talk(s)!

]]> By: Megan https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564175 Wed, 05 Oct 2016 18:32:23 +0000 https://blog.katescarlata.com/?p=9606#comment-1564175 In reply to katescarlata.

Thanks for the quick reply! I really appreciate all of your blog posts. Also, I forgot to mention, I am studying to be an RD right now and I’ll be at FNCE in a couple of weeks. I hope to make it to your session!

]]> By: katescarlata https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564174 Wed, 05 Oct 2016 18:22:23 +0000 https://blog.katescarlata.com/?p=9606#comment-1564174 In reply to Megan.

One slice of bread likely not enough gluten for accurate testing–particularly just in one day. It is recommended to consume at least 2 slices of wheat bread if not –3 per day for 2-4 weeks. You could see if you carry the celiac genes–if negative for both (no gluten ingestion necessary for testing)–then celiac disease is ruled out. If you are positive for one or more genes–then you might discuss w/ your GI doc the possibility of doing a proper gluten challenge and re-testing.

]]> By: Megan https://blog.katescarlata.com/2016/10/04/howtoproperlydiagnoseceliacdisease/#comment-1564173 Wed, 05 Oct 2016 17:53:10 +0000 https://blog.katescarlata.com/?p=9606#comment-1564173 Hi Kate,

Thank you so much for all of the great information about different GI topics. I have a question about Celiac testing and false negatives. Do you know about how strictly someone needs to be following a gluten-free diet in order for the blood test to be negative? I am asking because I was tested before (blood test only, not an endoscopy), but the results came back negative. However, I had been eating a mostly gluten free diet for a couple months leading up to the test. I was not worrying about cross-contamination or trace amounts of gluten, so I’m sure I had some exposure. I also had a piece of bread the day of the test. Do you think the negative results were accurate? I seem to react negatively to eating gluten, but I’m not sure if that is a symptom of Celiac or just the FODMAPs in wheat. I was recently diagnosed with Hashimoto’s, so that is why I was thinking it might be Celiac.

Thanks,
Megan

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